West Syndrome (epilepsy) help a teen

My daughters son Kian was born in 2004 with West Syndrome which is a very servere form of epilepsy.
He is now 17 years of age and is now over 6 feet tall.
He needs 24 hour care as he is unable to do anything for himself and is non verbal.
He is trapped Inside himself and he has out grown his bed which is his safe haven during the night.
The local authority won’t help my daughter with funding a new bed for him, so she has set up a gofund me page.
I’m not begging and nor is she, but if you can help, we would be very grateful.
Even just sharing the page will be enough, just to spread the word.
Thanks for reading and you will get a better insight by reading kians story on the gofund me link.
Here is the link to the page.
gofund.me/54ddbf47

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