Being sick.

[Pat Hasler]

No it's not scary, it's bloody criminal, how on earth can they justify those prices? I know a lot of research goes into it and many other factors, but holy rude word, that is mental.

BTW you're an inspiration the way you're coping with it mate, still going to work, still getting up at silly o clock to watch F1 and still on your crusade against Donald Trump, keep fighting it.

Thank you Mark

[Pat Hasler]

Thing is, I am in no way brave or strong, if you could see the tears in my eyes each time they come at me armed with half a dozen needles you would see how scared I am LOL. The worst thing I have experienced so far is the plasmapheresis process when they pushed a catheter down inside my jugular to my heart to completely filter my blood and when I started this new drug the doctor suggested doing it one more time to give it a fresh start, I flatly refused, I don't ever want to go through that again, I lost so much blood before they started that I almost died. I know that if this treatment does not work I will have no choice but to do it, not just again, but every month as my Mother did, she had to have it because back then there was no other known treatment for the disease.

[alans123]

Hi Pat

I wish you all the luck in this world.

[Pat Hasler]

Hi Pat

I wish you all the luck in this world.

Thank you

[remy]

All the best Pat, keep up the good fight.

[Pat Hasler]

Thanks Charles, The good news is that on my recent hospital visit, which was this last Friday (14th April) my blood count was up and I am making my own red cells, my IgM's have now dropped fro 6,900 to 3,160 which is an amazing outcome fro using the new drug, my weekly appointments have now been changed to monthly and at this rate, all being well I should be in the clear so long as I keep on the pills daily, if I stop taking them I will revert to being very sick again. Fact is the new drug will be keeping me alive and I can't live without them, so I will keep taking them providing the affordable health care stays in place.

[stevejones]

good news pat im back over next wk not sure what im doing but will look out 4ya gd luck m8

[Pat Hasler]

good news pat im back over next wk not sure what im doing but will look out 4ya gd luck m8

Glad to see you are coming back mate, I will be looking out for you, every time I see a Midland truck I still look thinking it might be you LOL.

[stevejones]

ok pat will let ya know what my new colours will be when back lol stay well m8

[hkloss1]

Not sure it is related to your condition Pat, but makes for an interesting reading nonetheless

http://www.telegraph.co.uk/science/2017 ... e-therapy/

[Pat Hasler]

Thanks mate, and interesting read, unfortunately what I have does not have a cure, I will eventually die from it. My new very expensive treatment will just keep it under control.





http://www.healthline.com/health/macrog ... m#Outlook6

After reading this I see I have 11 years at the most to live

[Pat Hasler]

Latest update.
I went for a check with the cancer centre in Glens Falls today, it's been 5 weeks on this drug without the chemo and my IgM's have dropped to a new low of only 1948 per unit of blood and my blood count has shot up to 14.8. Last November when this was first discovered my IgM's were at over 6000 per unit and my blood count was 4.8 and so low I was hours from death. Chemo seemed to make matters worse, my IgM's actually spiked and due to the heavy bleeding from my urinary tract (I was pissing almost pure blood)in order to not die I had regular blood transfusions. Stopping the chemo has actually saved my life in real terms. When the chemo stopped the IgM's were just bellow 6000 and with the transfusions my blood count was at 11.5 and would drop if blood was not added. Now the levels are so good that I have been told I only need a check up every 6 weeks from now on and probably every 6 months after the next one. I will never be cured, I know that but this is good.
I want to thank all of those who showed concern and friendship. I would really like to thank all those who's blood is now running through my body, although I doubt any of them are on here

[Hurryup&wait]

Hi Pat,

Thank you for all the updates which were not at all comfortable reading at times so I can hardly imagine what your body and mind are experiencing.

I am delighted and relieved that at last you are getting a break in your huge and gallant battle against this illness.

My very best wishes, thoughts, prayers and support are with you and your family that you get the result you desire and deserve.

Having been very underwhelmed by my US OTR driving experience in the 90's I do enjoy your posts that frequently tell it as it is and not the glammed up/chromed up version which might otherwise confuse dreamers from this side of the pond.

Keep her lit and the shiny side up.

h&w

[Pat Hasler]

Thank you my friend