Sleep Apnoea - my personal experience

Well, where do I begin?

Ok a bit of background: I had been informed on several occasions that I snore, and had some general low-energy ‘slugginess’ especially first thing in the morning. Now, after being with my current girlfriend long(er)-term, she was getting really concerned that I stop breathing a lot at night and literally gasp for air. I asked my doctor about this and got a hospital referral. Here follows what happened next…

1st hospital referral - I was weighed, had my neck measurement taken and blew into a lung capacity measuring machine. This also measures the power you can breathe out with. You also fill out a questionnaire asking you about certain activities and the chances of you maybe dozing to each one. Just answer it honestly is my advice here. The specialist believed I had sleep apnoea and said that it would probably be due to having a smaller than average lower jaw, plus the medication I am taking for another condition won’t be helping it.

2nd hospital referral - Here, I used the lung capacity measuring machine again and was told I blew better this time, despite feeling less than 100% due to a cold!?! Unfortunately my jovial spirit dropped soon after as I was lead to the consultant’s room to be informed I had serious sleep apnoea. It was absolutely devastating to be told this, with all the potential issues that lay ahead as an HGV driver. I enquired about private treatment with the consultant, as it is apparent you can start treatment MUCH earlier than waiting on the NHS referral.

What then followed went something like this:

I contacted the DVLA and they sent the SL1V form out plus an ‘options’ sheet prompting me to choose what to do about my licences. I elected to keep them rather than surrendering at this point. The crucial mistake I made, however, was rushing the SL1V form back with the declaration that I had a sleep condition and that it was NOT under control. In case you’re confused reading this - yes, at that point that was the case, but I had something like 21 days to return the form and a couple of days later I was able to start a CPAP trial. Net result is I was able to get back driving after being what I believed to be green lights from my GP (and the DVLA). Unfortunately, despite believing I had changed my ‘status’ verbally on the phone to the DVLA, they had to process and act upon the information that I provided to them originally and revoked all of my driving licences. By this point I had been using a loan machine from the private hospital (until such point as I could order my own, with the prescription from my private consultant). I then faced the agonising prospect of being at the mercy of the DVLA’s licensing ‘system’ as I had to re-apply for my licences based on my improvement in my medical condition. This took around 6 weeks for me to get my licences back!!

Basically my advice is as follows: If you haven’t yet been diagnosed but it is suspected you have it, you should have the diagnosis. To carry on regardless and risk your own life and the lives of others should you fall asleep at the wheel is, plainly, irresponsible and selfish. If you test positive for sleep apnoea then the best thing to do is get on treatment ASAP. Go private, I was able to get on a CPAP ‘trial’ within days and only had to pay the consultant’s fee (around £300) a couple or so weeks later. They will perhaps loan you a machine until you are in a position to obtain your own one. Out of interest the NHS referral took around a month to get the first appointment and the next week after that to receive a machine from them. You must inform the DVLA right away of your diagnosis (and suspend driving until you get on treatment). They will send you the SL1V form (see above for my experience and crucial mistake!) - you have around 21 days to get it back to them. Basically, get on treatment as fast as possible and then you can answer the appropriate question on the SL1V form - “Is your condition under treatment?”, or words similar to that effect. If you are not on treatment you cannot answer yes to this, it would be an offence which will leave you liable to prosecution. If you answer ‘no’ then within approximately 2 weeks the DVLA will write to you revoking your driving licenses. Bad news if driving is your livelihood!!!

Another important thing to note: when you submit correspondence to the DVLA, wherever possible send it electronically (e-mail or fax, they will provide you the information if you ask for it) - it saves a lot of time (days) in their whole ‘processing’ stage.

I hope this provides insight and information for anyone else who has/may have this increasingly common condition!

It is very common in men with a certain size of their neck, being overweight is another issue, and the condition of GORD or Gastric Oesphegul Reflux Dissorder or Disease may stop you breathing in the night where you choke on acid coming up the food pipe, common drugs to treat this are Omprezole, Lanzoprole or Gaviscon, the weaker one they sell at Boots is not strong enough.
A procedure called Fundoplictation rectifies GORD by moving around bits by the stomach so the damaged tissue can heal and repair, by having a pipe down the stomach should see what is going on down there.Key hole surgery for this Fundo op.

My experience of using the NHS was very good.

Went to GP who made referral to hospital, they sent letter with appt for a sleep study for which I stayed overnight in hospital.

When letter came with result that I did have SA, I rang and asked when the next stage of treatment would be as I’m a hgv driver, oh we best get you in ASAP. That was the Thursday, went in Saturday morning to get loan CPAP machine. The following Friday I went back in, they checked the data on loan machine, and set up a machine for me to take home.

I stopped driving as soon as I had official diagnosis, and informed the DVLA once I was on treatment, was never told I had to stop driving, just the week or so I took myself off the road.

I think I’m getting excellent treatment from the NHS and nits not cost me a penny, well impressed as at first I thought I would have to pay for the machine etc.

Wow NJDav, you got a better experience of the NHS than I did! I mean, nothing wrong with them once I got the appointments, etc. Just the time taken. I’m based in Essex so had to go through the London Chest Hospital in East London (E2, Bethnal Green). I was marked down as priority also. I guess maybe it comes down to luck of the draw (or postcodes, lol!) I was lucky in that I had borrowed some money to tie me over for a couple of months in preparation for the worst-case scenario of having no work and relying on SSP; which is exactly what I ended up with! I just would not want anyone else to experience any hardship related to this matter - hopefully people will be armed with enough knowledge to know the correct way to proceed should they be diagnosed…

Well here’s a turn-up for the books - I’ve just gone from not being able to even drive a car (because of waiting for my licences back from DVLA) to gaining the Class 1 (C+E) in the space of 3 weeks. So feeling rather chuffed now :slight_smile:

Hmm, my experience of the DVLA and the hospital in my case of OSA are pretty good.

I DID fall asleep at the wheel, while driving a bus, but thankfully no-one was hurt!

Anyhow, as i didnt know what happened and i had a memory blank, I had to inform the DVLA who in conjunction with my GP immediately suspended all my licences…

Anyhow, from GPs suspicion of OSA, to getting licences fully re-instated was 8 weeks ISH! it took 2 weeks for referral to get sorted, than another week to complete at home sleep study and get another appointment for the results. A week later I had my own paid for NHS CPAP and the DVLA was informed of my going on CPAP.

they informed me (in writing) that i had to complete 2-3 weeks on CPAP to ensure i was successfully treated AND (and this is important) Compliant with the treatment. A week later i was informed by letter that my licenses were being re-issued and i could drive again from the date on the letter, 2 weeks later my licences were re-issued BUT my vocational’s are only valid for 12 months!

the hospital were SUPER efficient, the DVLA were completely useless! :laughing: :laughing:

still, its all sorted now!

Cheers

B…

And here is my story. I had been away on holiday for a month last year, and on my return it was time to renew my licences, so had the medical and sent the paperwork off, DVLA wrote to me to say i had S/A which was news to me, so i phoned them up to explain, that although i have had a sleep problem, i have never been diagnosed with anything, usual questions had been asked by the doctor such as, are you depressed etc, then take these pills and let me know how you get on with them, they were too strong, so just stopped taking them, i might add that a few years previous, i had been to St Thomass hospital in London for a sleep test, only to be told that although i am very restless during the night, there was nothing they could do. Anyway, DVLA asked me to put in writing about my not having S/A. So they eventually returned my licences after 6 months of wrangling, and i thought that was that. I went to the doctor on a routine visit, and mentioned my constant tiredness, and i asked to be referred to the sleep clinic, i saw a consultant who, after looking at the forms i had to fill in, stated he thought i had S/A. So this week i had to collect a watch type device that i wear at night for 2 nights, this watch has a wire that fits onto my finger, whilst talking to the nurse who was explaining how it works, i mentioned the fact i am a HGV driver, although now retired, but would like to work part time, if i felt fresh in the mornings after restless nights, ( i actually fell like ive been up all night and its time for bed ) anyway, i told her that I suppose they would refer my case to the DVLA, and she said Not yet, but there wont be a problem if your receiving treatment for it im not really bothered all that much anymore, as i have not worked for 9 months anyway, but my car licence is important, and she did put my mind at rest. I only have a 2 day test, and have to return the watchby 1pm on Thursday, and then i have to wait 3 months to see the consultant for the outcome or diagnosis. I know a few people who have been given a face mask ( oxygen ) and it has changed their lives, so thats what i am hoping for. A few years ago, i did have an operation on my throat ( sleep related ) but i was told that this operation is not done anymore because it does not work, ( funny really, cos my daughter has just had it done ) i was also told that they are a lot closer to understanding S/A, andtimes are changing` Anyway, i just booked my flight for my usual month away in my apartment by the sea, so hopefully, when i return, i can do the follow ups, and hopefully, start to get a decent nights sleep, and i hope that all drivers out there, who are suffering sleepless nights, get the treatment they so deserve.